Indigenous Data Sovereignty and Genetics

Monday, August 28, 2017

On July 13, USIDSN co-founder and NNI Associate Director Stephanie Carroll Rainie hosted a discussion with Nanibaa’ Garrison, USIDSN Advisory Council member, Assistant Professor at the University of Washington, and the Seattle Children’s Research Institute, and Maui Hudson, Te Mana Raraunga – Maori Data Sovereignty Network co-founder and Associate Professor at the University of Waikato in New Zealand at the University of Arizona Summer Internship for INdigneous Peoples in Genetics (SING). The lively discussion with SING students and faculty focused on the increasing role of Indigenous data sovereignty in genetics research. Dialogue included strategizing to exert governance control over already existing datasets and biobanks as well as considering how to promote Indigenous data sovereignty in the face of increased biospecimen collection, storage, and secondary use.